Urgent Update: Identical twins Ethan and Edward Chen are capturing hearts as they navigate life’s hurdles together, despite their vastly different circumstances. While seven-year-old Ethan dreams of basketball stardom, his twin brother Edward lives with severe disabilities, including level four spastic quadriplegic cerebral palsy and a complex congenital neurological malformation. This poignant story is drawing attention as the family prepares for the upcoming Telethon 2025 event aimed at supporting children with complex conditions.
In a touching moment, Ethan recently told his mother, Genevieve Chua, “Mum, before you die, you need to teach me everything you know about Edward, so I can continue to look after him after you go.” This statement highlights the deep bond between the twins, showcasing Ethan’s instinct to protect his brother. Genevieve, overwhelmed with emotion, emphasizes that while she never intended to place such a burden on Ethan, he seems innately aware of his role as Edward’s guardian.
The twins’ journey began dramatically at King Edward Memorial Hospital in Australia. Diagnosed with the life-threatening twin-to-twin transfusion syndrome at just 25 weeks, the boys underwent emergency surgery to save their lives. While Ethan emerged healthy, Edward faced a series of challenges that would shape their lives forever.
Genevieve reflects, “From that point, I think our life has been not knowing.” Initially appearing healthy, Edward was later diagnosed with extensive brain damage following an MRI when they were six months old. This diagnosis marked the beginning of countless medical appointments, therapies, and advocacy efforts by Genevieve, who transitioned from a veterinary career to focus on her sons’ needs.
Despite their challenges, the brothers share a unique bond. “Ethan knows when Edward is having a difficult day,” Genevieve explains. Their daily walks in their local Willetton neighborhood have become a cherished routine. “A lot of people say hi to him, he’s quite famous around here,” she adds, revealing Edward’s love for social interaction.
Genevieve’s commitment to both boys is unwavering. She acknowledges the emotional toll of caring for Edward, especially during emergencies like a recent seizure that left Ethan confused and scared. “I thought I had lost him,” Genevieve recalls. “We had to come back and untangle this traumatic event with Ethan.”
As the family prepares for Telethon 2025, they express gratitude for the support received from organizations like the Healthy Strides Foundation, which has been pivotal in providing therapy and rehabilitation for Edward. “We are so grateful to live in WA. The generosity of the public is crazy,” Genevieve states, highlighting the impact of community support in their lives.
The Chen family’s story is a testament to resilience and love, as they face each day with determination. Genevieve reminds Ethan of their unique bond, saying, “Not many people in this world can have this special bond with a brother.”
As Telethon 2025 approaches, the Chen family’s journey is a poignant reminder of the strength of familial love and the importance of community. Their story is one that resonates deeply, offering hope and inspiration to many.
Stay tuned for more updates on the Chen family and the impact of Telethon 2025 as they continue to advocate for children with complex needs.
